Monthly Archives: August 2011

RECOVERY TALE: Sarah Manguso – the disease that stole my youth

Excerpt of her tale as published on http://www.guardian.co.uk: When poet Sarah Manguso’s immune system attacked her nervous system, she was forced to endure years of harrowing treatment. In this poignant extract from her memoir, The Two Kinds of Decay, she … Continue reading

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Bed Number Ten by Sue Baier

An editorial review from rom Publishers Weekly on this book: A Houston housewife, mother of two teenage daughters, Baier endured a virtual living death when she contracted Guillain-Barre syndrome. Suddenly and without apparent cause, her body was entirely immobilized; meanwhile … Continue reading

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WATCH: Grammie & Papa (VIDEO)

Video uploaded to YouTube by alissakoenig. In February of 2010, at the age of 89, my Grammie was diagnosed with Guillain Barre syndrome, leaving her completely paralyzed. She was in “twilight” and on a breathing machine. Then came the long … Continue reading

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Here is Evan Rothman’s G.B.S. experience shared with the world

Please click on this link to download the PDF document: Tread Carefully by Evan Rothman

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Here is another inspiring tale!

Listen to this message on this audio clip: gbs And then watch these videos of the patient walking!

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Eric Abdoll shares his G.B.S. experience…

I have thought about this for a while and decided that I would share my story with the GBS Survivors Network. Friday 7 January 2011 I arrived home after a long hot day at work, mostly spent on my feet. … Continue reading

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