Category Archives: News
Amazing Recovery for GBS patient
Through various treatments, this brave GBS survivor has pulled through to a strong recovery. Watch the story here…
Susan Dean’s also a CIDP fighter like you!
Read Susan Dean’s blog on her journery to a healthy life with CIDP, from Moscow, Russia here: http://hsctforcidpnmsnad.blogspot.ru. Here is a short extract from her latest post… I am transformed! In numerous ways I will never be the same as … Continue reading
New study published!
Nobuhiro Yuki studied the pathogenesis of GBS in “Guillain-Barre Syndrome and anti-ganglioside antibodies: a clinician-scientist’s journey.” To read the full article, please click HERE.
RECOVERY TALE: Sarah Manguso – the disease that stole my youth
Excerpt of her tale as published on http://www.guardian.co.uk: When poet Sarah Manguso’s immune system attacked her nervous system, she was forced to endure years of harrowing treatment. In this poignant extract from her memoir, The Two Kinds of Decay, she … Continue reading
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Bed Number Ten by Sue Baier
An editorial review from rom Publishers Weekly on this book: A Houston housewife, mother of two teenage daughters, Baier endured a virtual living death when she contracted Guillain-Barre syndrome. Suddenly and without apparent cause, her body was entirely immobilized; meanwhile … Continue reading
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WATCH: Grammie & Papa (VIDEO)
Video uploaded to YouTube by alissakoenig. In February of 2010, at the age of 89, my Grammie was diagnosed with Guillain Barre syndrome, leaving her completely paralyzed. She was in “twilight” and on a breathing machine. Then came the long … Continue reading
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Here is another inspiring tale!
Listen to this message on this audio clip: gbs And then watch these videos of the patient walking!
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Eric Abdoll shares his G.B.S. experience…
I have thought about this for a while and decided that I would share my story with the GBS Survivors Network. Friday 7 January 2011 I arrived home after a long hot day at work, mostly spent on my feet. … Continue reading
A book on how to cope with peripheral neuropathy
I’ve come across a handy book on Amazon you might find helpful… Coping With Peripheral Neuropathy: How to handle stress, disability, anxiety, fatigue, depression, pain, and relationships [Paperback] It can be viewed in greater detail and purchased from here: http://www.amazon.com/Coping-Peripheral-Neuropathy-disability-relationships/dp/0595449670
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G.B.S Survivors' Network Southern Africa 