WATCH: Grammie & Papa (VIDEO)

Video uploaded to YouTube by alissakoenig.

In February of 2010, at the age of 89, my Grammie was diagnosed with Guillain Barre syndrome, leaving her completely paralyzed. She was in “twilight” and on a breathing machine. Then came the long process of all of her nerves recovering and the need for her to relearn everything, then physical therapy… Through it all my Papa was faithfully by her side (as he has been for over 68 years), with the help of my father and aunts. It was during this time that I became engaged, and when it was finally okayed for me to visit her she couldn’t move and could barely speak, but she said to me, “I will be dancing at your wedding.” And here she is, 8 months later, dancing at my wedding.

Here is Evan Rothman’s G.B.S. experience shared with the world

Please click on this link to download the PDF document: Tread Carefully by Evan Rothman

Here is another inspiring tale!

Listen to this message on this audio clip:
gbs

And then watch these videos of the patient walking!

Eric Abdoll shares his G.B.S. experience…

I have thought about this for a while and decided that I would share my story with the GBS Survivors Network.

Friday 7 January 2011 I arrived home after a long hot day at work, mostly spent on my feet. I had a slight headache and my feet were a bit numb, I took it that it was because of spending most of my time on my feet and the fact that it was 30°C in Uitenhage. The next morning a woke up with the same symptoms. This raised concerns with me and I was off to the doctor.

Being diagnose with a viral infection and medication in hand, I felt that soon I will be back to my normal self.

Share YOUR story!

I’ve recently been posting inspirational stories of Guillain-Barre Syndrome survivors from around the world. With a southern African twist to this site, I’d love to share YOUR stories of recovery. If you feel you have the power and strength to write to me about your experiences to post on this site, please do so to evanrothman@gmail.com. The story may be as long or as short as you wish it to be. I’ll post a brief story of my experience with GBS in the next week to hopefully motivate you to put your thoughts to paper.

Keep strong, friends!

UPLIFTING STORY: U.S.A. sophomore student rebounds from neurological disorder

Excerpt from http://wusa9.com/: When Katie Hayes, was diagnosed with a neurological disorder that prevented her from walking, she never thought she would be able to play basketball, or any other sport, ever again.

“It’s been really tough,” said Hayes, who has been coping with chronic inflammatory demyelinating polyneuropathy (CIDP) for over a year… 

Read the rest of this uplifting story here: http://wusa9.com/sports/story.aspx?storyid=135782&catid=25

 

A book on how to cope with peripheral neuropathy

I’ve come across a handy book on Amazon you might find helpful…
Coping With Peripheral Neuropathy: How to handle stress, disability, anxiety, fatigue, depression, pain, and relationships [Paperback]

It can be viewed in greater detail and purchased from here: http://www.amazon.com/Coping-Peripheral-Neuropathy-disability-relationships/dp/0595449670

A What-is-GBS video by Dr John Baker (VIDEO)

Here’s another tale of recovery from GBS. Even though John’s case was mixed with other problems, his tale is enlightening nonetheless and highlights that GBS can be overcome. Fighting Death: Facing Guillain-Barre Syndrome

New studies shed more light on Multiple Sclerosis and Guillain-Barre Syndrome

More news on Multiple Sclerosis and Guillain-Barre Syndrome: http://news.softpedia.com/news/News-on-Multiple-Sclerosis-and-Guillain-Barr-Syndrome-160307.shtml