The many ills of peripheral nerve damage

Here’s an article I also found, which is useful when trying to explain to non GBS patients the pains we experience: http://query.nytimes.com/gst/fullpage.html?res=9404E4D6123DF933A15753C1A96F9C8B63

Once a prisoner of her body, now stronger after battling adversity

Here is the encouraging and uplifting story of Janay Ryals I came across on the New York Times website. Please click here to read the article: http://www.nytimes.com/2008/02/05/nyregion/05neediest.html?_r=1

Little Sofi’s story of her recovery with Guillain-Barre Syndrome (VIDEO)

LINK: Information and news on Guillain-Barre Syndrome

Hello friends and fellow survivors,

I have come across this informative website with news and information on Guillain-Barre Syndrome. If you come across any such news or information, please send it to evanrothman@gmail.com and I will gladly post it here for all to view.

Click HERE for the link.

IN THE NEWS: Tick Paralysis is easily treated but often missed, say reports

Here is a link to an interesting article I came across on the Internet regarding the diagnosis of Guillain=Barre Syndrome.

It might make for interesting reading: http://egmn.idsk.com/stories_global/33_ds_12869815.jsp

Latest GBS newsletter available for download HERE!

The quarterly newsletter from the offices of GBS-CIDP Foundation International have posted this issue.

If you have any problems downloading this PDF file, please contact Evan Rothman at evanrothman@gmail.com. We will then send this newsletter to your inbox.

Climbing To Recovery GBS (VIDEO)

Click the below link to watch a video on GBS from the GBS-CIDP Foundation International.

http://vimeo.com/11686193

Support Groups in South Africa

The G.B.S. Survivors’ Network Southern Africa has a support system in place with support groups in Johannesburg, Durban, Port Elizabeth and Cape Town. We are looking for survivors to create more support groups countrywide, and we will assist in every step of the way. As this is a volunteer-based network, support groups are all self-managed by members wishing to meet.

Meeting with survivors, and sharing your experience is not only a healing process but might also offer new insights into the recoveries of others. We do not need to be alone.

Should supports groups and meetings not be your cup of tea, please do not hesitate to contact leader Evan Rothman at any time.

Welcome!

Guillain-Barre Syndrome (G.B.S.) is a rare medical condition that affects any one, of any age and attacks at any time. Your peripheral nervous system (i.e. your arms and legs) become paralysed by your own immune system. Your immune system turns nasty by attacking you in a violent, ruthless and sudden manner burning all neurons and myelin sheaths in your body.

It is not known what causes this life-threatening syndrome, however scientists believe that a gastro-intestinal infection, chest infection or stress triggers the onset of this illness. This illness needs to be diagnosed quickly, treated immediately and nursed carefully.

There is no cure, or any prescribed treatment, which makes this frightening experience that much more daunting for both the sufferer and the medical team. There is also no way of predicting its course or in which manner it will affect one’s body.

To contact the G.B.S. Survivors’ Network South Africa, please contact Evan Rothman at +2783 452 6892 and at evanrothman@gmail.com.